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Do you know about MRKH?
Mayer Rokitansky Kuster Hauser Syndrome (MRKH): a group of symptoms beginning at birth which are related to the female reproductive tract.
What is MRKH?
MRKH is a congenital disorder that affects the female reproductive tract. Congenital means that it is there at birth. About 1 in every 5,000-10,000 female babies has this condition. MRKH is a syndrome (group of symptoms). We do not know the cause of this syndrome but we do know that when a baby grows in the mother’s uterus (womb), systems develop. One of the systems is called the reproductive system, which includes the uterus, vagina, fallopian tubes, and ovaries. The reproductive system is formed during the first few months of “fetal” life (while a baby is still in her mother’s womb). With MRKH, the reproductive system starts to develop but doesn’t completely finish.
Girls with MRKH have normal ovaries and fallopian tubes. Most often the uterus is absent or tiny. The vagina is typically shorter and narrower than usual or it may be absent. Sometimes, there may be one kidney instead of two. About 3% of girls will have a minor hearing loss and some may have spinal problems such as scoliosis (curvature of the spine).
When is a girl likely to find out she has MRKH?
The most common age for MRKH to be diagnosed is when a young woman is between 15 and 18 years old. That’s when a young woman is likely to see her health care provider because she hasn’t started her period. Some girls may find out at an earlier age or when they are older.
Can anyone tell that I have MRKH?
Some young women wonder if anyone can tell if they have MRKH. The answer is no. No one, except you and your doctor, can tell that you were born with an incomplete vagina and following treatment, with dilators or surgery, your sexual partner will not be able to feel any difference.
You may have additional questions about MRKH if it affects you or somebody in your family. Our sexual medicine specialists can help answer questions and provide treatment avenues in sex therapy and pelvic floor physical therapy. Contact our clinic to schedule an appointment with Lindsay Novak for more information.
Additional website information on MRKH is: http://www.youngwomenshealth.org/mrkh_teen.html
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Do you know about MRKH?
Mayer Rokitansky Kuster Hauser Syndrome (MRKH): a group of symptoms beginning at birth which are related to the female reproductive tract.
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